Page 1: Introduction

The Autism Centre for Education and Research (ACER) and the Education Leadership Academy (ELA) at the University of Birmingham are conducting research to understand the causes for educational exclusion of students on the autism spectrum and how educational settings (early years, school and FE) can be supported in reducing the number of exclusions. As part of this research project we are gathering the views of different stakeholders - educational staff, parents and autistic adults.

We are looking for autistic adults (to complete the questionnaire you must have a current diagnosis of autism, Asperger Syndrome or PDDnos) who have been excluded from a school in England. If you didn’t have an autism spectrum diagnosis at the time of the exclusion but received your diagnosis later then please still complete the questionnaire


We are only looking for people to complete the questionnaire who are currently aged 18 years or older.


If you feel it would help to discuss the questions with a relative, a friend or someone you work with, then please do so. You could also arrange to speak with Dr. Prithvi Perepa ( from our research team and complete it over the phone together.

 There are three types of exclusion your may have experienced:

  1. Permanent exclusion – when you were excluded from school and asked not to return and your parents were asked to find an alternative school or service
  2. Temporary (“fixed-term”) exclusion – when you were excluded for a period of time  (it may be days or weeks) but then returned to the same school
  3. Unofficial, informal or non-disciplinary exclusion - when you were asked to stay at home for a day or a few days because of a reason that was not to do with your behaviour (e.g. the school arranged a trip and didn’t have a specialist teacher to support you). Or they sent you home to “cool off”.


If you were excluded more than once then please tell us about the time that you remember best.


The project is following the University ethics committee protocol and all information which you will share with us will be treated confidentially. The collected data will be stored on the secure University systems for ten years and will only be used for the purpose of this project and associated work.

We are not asking for your name or address, so the answers can not be linked back to you. On completion of the survey you will be provided with a unique ID number and please store this some place safe. If you decide to no longer take part in the project then please email Dr. Prithvi Perepa ( within one week of completing the survey quoting this number and your data will be deleted. If you wait longer than a week it will no longer be possible to delete your data.   


The overall findings from this consultation will be made available to the public in a report that will appear on the University of Birmingham, Autism Centre for Education and Research ( and the Autism Education Trust ( websites in May 2020. They may also be used in academic publications, workshops and training courses. We hope that the findings from this project will lead to changes in educational practice and influence future policy.


If you have experienced any of the examples of school exclusion described above then please go ahead and complete this questionnaire. It should take around 20 minutes to finish.


If you don’t know the answer to any question, please move on to the next question. If you don’t want to answer any question, just choose the ‘I do not want to answer’ option and move on to the next question. Most people enjoy taking part in research, however, if it brings up feelings that you would like to discuss further with specialists then we would suggest contacting the following organisations:

National Autistic Society – 0808 800 4104

Ambitious About Autism – 020 8815 5444;


If you haven’t experienced being excluded from school but know of people who have or have an opinion on the matter and would still like to get in touch with your thoughts then you can email us here: Dr. Prithvi Perepa (


This project is funded by UK Research and Innovation.

This part of the survey uses a table of questions, 

1.1. To consent to take part in the questionnaire please tick if you agree with the statements: Required

Please don't select more than 1 answer(s) per row.

Please select at least 4 answer(s).

I agree to take part in the study
I confirm that I have read and understood the participant information (information above)
I understand that my data will be kept secure and confidential on the University of Birmingham’s server
I understand that my data will only be used for the purposes highlighted above i.e. a public report, academic publications, workshops and training courses