Page 1: Introduction

Has your child ever experienced exclusion from school, including pre-school? Research from the University of Birmingham are looking for parents who have a child on the autism spectrum who is currently in an English school or who has been in the past. We want to hear about your experiences and how it impacted on the family.


 There are three types of exclusion your child may have experienced:


  1. Permanent exclusion – when your child has been excluded from school and asked not to return and to find an alternative school or service
  2. Temporary (“fixed-term”) exclusion – when your child has been excluded for a period (it may be days or weeks) but then returned to the same school
  3. Unofficial, informal or non-disciplinary exclusion - when your child has been asked to stay at home for a day or a few days because of a reason unrelated to your child’s discipline (e.g. the school has arranged a trip and doesn’t have the specialist resource to support your child). Or they may have sent your child home to “cool off” but not recorded it as an exclusion.


It may be that you are going through the exclusion process now or it is something you experienced in the past.


If your child has been excluded on multiple occasions then please report on the occasion that is clearest in your mind.

If you have more than one child on the autistic spectrum who has been excluded, please complete separate questionnaires.

We are not asking for your name or address, so the answers can’t be traced back to you. On completion of the survey you will be provided with a unique ID number - please store this some place safe. If you decide to no longer take part in the project then please email Dr. Prithvi Perepa ( within one week of completing the survey quoting this number and your data will be deleted. If you wait longer than a week it will no longer be possible to delete your data.   


The overall findings from this consultation will be made available to the public in a report that will appear on the University of Birmingham, Autism Centre for Education and Research ( and the Autism Education Trust ( websites in May 2020. They may also be used in academic publications, workshops and training courses. We hope that the findings from our project will lead to changes in educational practice and influence future policy.

The project is following the University ethics committee protocol and all information which you will share with us will be treated confidentially. The collected data will be stored on the secure University systems for ten years  and will only be used for the purpose of this project and associated work.

If you have experienced any of the examples of school exclusion described above then please go ahead and complete this questionnaire. It should take around 20 minutes.


If you don’t know the answer to any question, please move on to the next question. If you don’t want to answer any question, just choose the ‘I do not want to answer’ option and move on to the next question. Most people enjoy taking part in research, however, if it brings up feelings that you would like to discuss further with specialists then we would suggest contacting the following organisations:


National Autistic Society – 0808 800 4104

Ambitious About Autism – 020 8815 5444;


If you haven’t experienced your child being excluded from school but would still like to get in touch with your thoughts then you can email us here: Dr. Prithvi Perepa (


This project is funded by UK Research and Innovation.

This part of the survey uses a table of questions, 

1.1. To consent to take part in the questionnaire please tick if you agree with the statements: Required

Please don't select more than 1 answer(s) per row.

Please select at least 4 answer(s).

I agree to take part in the study
I confirm that I have read and understood the participant information (information above)
I understand that my data will be kept secure and confidential on the University of Birmingham’s server
I understand that my data will only be used for the purposes highlighted above i.e. a public report, academic publications, workshops and training courses